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CCDSS Diabetes mini-survey (mock up)

 

The following survey is intended to support diabetes surveillance in Canada by asking the CCDSS Technical Working Group experts to provide information to help guide data collection efforts to differentiate between type 1 and type 2 diabetes, using administrative data and other non-conventional data sources. 

There are 15 questions in this survey.
(This question is mandatory)
1
.  Province/Territory
2
.  Please list the DATABASES and included in this data source and the FISCAL YEAR(s) available for that database (Year range 1995-2022). Include database name and relevant documentation. For example: Electronic medical records: Database 1: Hospital database (2004-2022) Database 2: Physician database (2000-2022)
Diabetes registry
Electronic medical records
Laboratory
Prescription drugs
Insulin pump data
Other data sources (e.g., disability benefits or tax credit, continuous/flash glucose monitoring data etc.)
(This question is mandatory)
3
.  Please indicate the COVERAGE of the data sources. 
Diabetes registry
Electronic medical records
Laboratory
Prescription drugs
Insulin pump data
Other data sources (e.g., disability benefits or tax credit, continuous/flash glucose monitoring data etc.)
4
. Please include any additional comments you may have regarding registry coverage.
(This question is mandatory)
5

 .  Which DEMOGRAPHIC DATA ITEMS are provided by these data sources?

Diabetes registry
Electronic medical records
Laboratory
Prescription drugs
Insulin pump data
Other data sources (e.g., disability benefits or tax credit, continuous/flash glucose monitoring data etc.)
6
.  If you selected 'Other', please specify the additional demographic data items included in these data sources? Also include any other relevant details, including the versions of ICD codes and number of digits if available.
(This question is mandatory)
7
.  Which DISEASE-SPECIFIC DATA ITEMS are provided by these data sources?
Diabetes registry
Electronic medical records
Laboratory
Prescription drugs
Insulin pump data
Other data sources (e.g., disability benefits or tax credit, continuous/flash glucose monitoring data etc.)
8
.  If you selected 'Other', please specify the additional diabetes-specific data items included in these data sources? Also include any other relevant details, including the versions of ICD codes and number of digits if available.
(This question is mandatory)
9
.  Do these data sources meet DIABETES CASE DEFINITIONS?
Diabetes registry
Electronic medical records
Laboratory
Prescription drugs
Insulin Pump data
Other data sources (e.g., disability benefits or tax credit, continuous/flash glucose monitoring data etc.)
10
.  If you selected 'Uncertain' or 'No' for any of the data sources above, please elaborate. Include case definitions by type and relevant validation studies.
(This question is mandatory)
11
.  Are these data sources LINKABLE to CCDSS?
Diabetes registry
Electronic medical records
Laboratory
Prescription drugs
Insulin pump data
Other data sources (e.g., disability benefits or tax credit, continuous/flash glucose monitoring data etc.)
12
.  If you selected 'Uncertain' or 'No' for any of the data sources above, please why the data source is non-linkable to CCDSS.
13
.  Are there any REPORTING CONSIDERATIONS with these data sources?
Diabetes registry
Electronic medical records
Laboratory
Prescription drugs
Insulin pump data
Other data sources (e.g., disability benefits or tax credit, continuous/flash glucose monitoring data etc.)
14
.  Please comment on any RELEVANT PUBLICATIONS where these data have been used for diabetes? 
15

If you wish to submit any documents along with the survey, please upload them here. 

(Accepted file formats: doc, docx, pdf, xlsx, xlsm, xls, txt, csv, html, odt, jpg, png)